Comments on: About Peritoneal Dialysis

By: Candace

Candace — Wed, 12 May 2010 19:56:29 +0000

I have lost 2 to PKD and I have 2 month old with it but doing ok right now her creatine just jumped up to 2 so we are not going to dialysis yet but we are still watching.

By: Andria

Andria — Tue, 11 May 2010 02:19:00 +0000

Sonya, I don’t know about a Facebook page, but our son is 18 months old and preparing for transplant. He’s been on PD since he was a week old. If you have any questions or comments, or would like to chat, e-mail us anytime at reymores @ gmail . com. Hope all is well with Blake, good luck to you!

By: Sonya Stone

Sonya Stone — Tue, 30 Mar 2010 06:51:51 +0000

Does anyone have a website or Facebook I could keep in touch it would be great to chat with other parents who have babies on PD dialysis… my son is 17 months his name is Blake- they truly are superbabies

By: Andria

Andria — Fri, 05 Mar 2010 03:16:20 +0000

Rebecca, with the right care, a 10 pound baby can certainly do peritoneal dialysis. I’m not sure about other issues, but size alone won’t keep him from doing well on dialysis. Our son survived from 4 pounds to 25 pounds, and is preparing for a transplant. Don’t give up!

By: rebecca clark

rebecca clark — Wed, 17 Feb 2010 05:38:59 +0000

My nephew is currently in the picu on an ecmo machine. the drs repaired part of his heart problems but also informed us that a baby his size has a slim chance on surviving dialysis. he is only three weeks old and weighs 4.7 kilos about 10 lbs. reading your stories gives me hope. thank you

By: Sheila Lunsford

Sheila Lunsford — Sun, 07 Feb 2010 00:41:13 +0000

My daughter was born with a kidney disease called Polycystic Kidney Disease. This causes multiple cysts to grow and the kidneys become very enlarged. Most babies dont live very long with this disease. Needless to say I had a son who had it also and only lived 10 hours. Thanks to the man above my daughter will be 3 months old on the 17th of Feb. She has been on dialysis since she was 3 weeks old. She had her first kidney taken out at 3 weeks old also. She just had her second kidney taken out about a week and half ago. So she no longer has kidneys. She just had a G tube put in also. Shes doing so good. Shes such a fighter. Shes doing well with her dialysis. Im learning the dialysis machine now to prepare for her to come home. She will be on it at least 16 hours out of the day when she comes home. We have alot of ups and downs but she makes it well worth it. After losing one child already to this disease I’ll do anything to keep her here on earth with me. God is making that happen for us. Its nice to read these replys and see that there is other people out there in the same situation and that Im not alone. I will be praying for all of you. Everyone keep there heaads up and keep fighting for your child. We are the only ones that can fight for them.

By: Lisa Lofland

Lisa Lofland — Thu, 06 Aug 2009 11:33:01 +0000

I have a cousin 38 weeks pregnant that was just informed that they only see one kidney on ultrasound and they do not think it is functioning well. They told her that if this is true the baby will die soon after birth because dialysis is not an option for a few months. Is this true, or is pd dialysis an earlier option. She is devistated.

By: Tiffany White

Tiffany White — Wed, 15 Jul 2009 22:40:03 +0000

Greetings to you! God bless you for this wonderful site. I was blessed to birth boy/girl twins in March. My son was born with multicystic kidneys in both and they had to take them both out. Yes, he died at birth but God said it wasn’t his time so he gave him back to us and he is now 4 months and still in the NICU but he is being put on the machine actually tonight! and will be coming home in a couple of weeks. I must admit I am scared to do this dialysis thing…but If I want my baby to live I must do this! My little girl was perfectly healthy…praise God! But, thank you for sharing your testimony and allowing people to get strength from your story! God Bless you.

By: Andi

Andi — Wed, 10 Dec 2008 23:10:38 +0000

Thanks so much for sharing everyone. I have a son who is 6 weeks old with one kidney that doesn’t function well. He is on dialysis, still in the NICU but we are trying to muster up the courage to bring him home soon! He will transplant at 20 pounds. It would be great to communicate with others who have or had an infant on dialysis. Everyone talks about how rare it is and you feel so alone sometimes. Best wishes to everyone and big prayers for the adorable Gavin.

By: Jessica

Jessica — Mon, 29 Sep 2008 03:57:55 +0000

I just came across your website and wanted to let you know that I have a son on CCPD. We found out when he was about a month old that he only had one aplastic kidney (absent right kidney). He has been on peritoneal dialysis for about a month and a half and is doing very well on it. He is just about to hit 7 kg and is 7 months old. He had a rough several weeks after he almost died at 1 month but since then he has been doing well. I wanted to let anyone reading this know that dialysis scared me so much at first but once you start it, it’s not nearly as scary. Machines do go off at all times of the night but really in the grand scheme of things since it is saving my baby’s life, it is well worth it. When I look at his sweet smiling face, all sacrifices are worth it and I am grateful that there is treatment available for his condition.

By: Laura

Laura — Mon, 15 Sep 2008 17:31:25 +0000

I have a 8 month old daughter she is currently on CCPD she started dialysis a week after birth due to twin to twin tranfussion twin A died in the utero and I want you to know you are in my prayes keep up the good work and thank you for being by your baby’s life its a rough road ahead for renal babies thay get pocked all the time and have so many complications and some parents just can’t take it. Its sad to say but I have seen it here at the hospital all the time. God bless thank you and keep it up

By: aaron budiman

aaron budiman — Mon, 09 Jun 2008 14:36:45 +0000

My boy had kidney failure and was born not being able to breath. After four hours knowing him, he went to be with his grandma and his Maker. I am so thankful that I got to meet him. That is very special to me. Every moment is special, the more you have them, the more you have to treasure about them.

By: Tiffany Read

Tiffany Read — Wed, 12 Mar 2008 17:57:13 +0000

I am 30 weeks pregnant with twins and they say one of my twins has severe kidney damage in both kidneys along with renal problems. They say that dialysis is extremely hard on the baby and that we may want to consider just letting him die so he doesn’t have to suffer, what do you think?

By: Ninoska Guzman

Ninoska Guzman — Thu, 31 Jan 2008 03:54:36 +0000

Hi, I happened to come by your website by chance, it really did touch me. I am going through a really rough time with my son as well. See I am 34 weeks pregnant and the doctors diagnosed my son with an absent left kidney and a multicystic right kidney. They tell me he might not survive. I’ve been looking for information on treatment options so far everything seems so limited. I am very glad that everything is going well with your family and baby.