Comments for Save Baby Gavin http://www.savebabygavin.com Save Baby Gavin Sun, 23 Jan 2011 01:25:34 -0600 http://wordpress.org/?v=2.8.4 hourly 1 Comment on Guestbook by Jamie Steele http://www.savebabygavin.com/guestbook/comment-page-8/#comment-138213 Jamie Steele Sun, 23 Jan 2011 01:25:34 +0000 http://www.savebabygavin.com/guestbook/#comment-138213 I just read your story about Gavin!! I am in tears, but I'm glad to see he was able to receive a kidney :O) My 4 month old Gavin was also born with 10% kidney function in the R kidney and no function in the other. Not untill he was 2 weeks we found out and he was admitted right away. Of course they gave us the worse news possible, Gavin was in the hospital for 3 weeks his potassium was really high, and sodium was severely low. He came home and has been growing and eating fine. They are now talking about dialysis. And I am just so scared, not really knowing what to expect. I am just glad that I found your inspirational story about Gavin!!! Your family is in my prayers!!! I just read your story about Gavin!! I am in tears, but I’m glad to see he was able to receive a kidney :O) My 4 month old Gavin was also born with 10% kidney function in the R kidney and no function in the other. Not untill he was 2 weeks we found out and he was admitted right away. Of course they gave us the worse news possible, Gavin was in the hospital for 3 weeks his potassium was really high, and sodium was severely low. He came home and has been growing and eating fine. They are now talking about dialysis. And I am just so scared, not really knowing what to expect. I am just glad that I found your inspirational story about Gavin!!! Your family is in my prayers!!!

]]> Comment on Happy 4th Birthday Gavin! by Christine "Miss Sparkle" Wolf http://www.savebabygavin.com/2010/02/23/happy-4th-birthday-gavin/comment-page-1/#comment-137781 Christine "Miss Sparkle" Wolf Thu, 20 Jan 2011 18:59:29 +0000 http://www.savebabygavin.com/?p=330#comment-137781 Happy Early Birthday Gavin, I know it is a month away yet but I was at your fundraiser 4 years ago and still pray and think of you, Lauren and your mom and dad. You and your family are in my thoughts and prayers, tell your mom to keep posting updates so we know how great you are doing. Love, Miss Sparkle (Christine Wolf) www.Miss-Sparkle.com Happy Early Birthday Gavin,
I know it is a month away yet but I was at your fundraiser 4 years ago and still pray and think of you, Lauren and your mom and dad.

You and your family are in my thoughts and prayers, tell your mom to keep posting updates so we know how great you are doing. Love, Miss Sparkle (Christine Wolf)

http://www.Miss-Sparkle.com

]]> Comment on About Peritoneal Dialysis by Jessica http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/comment-page-1/#comment-131340 Jessica Mon, 13 Dec 2010 02:34:45 +0000 http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/#comment-131340 Hi all who have asked about connecting with other moms with babies on dialysis/transplant. There is a great group called Kidney Moms on Facebook. Feel free to join. These mamas have been such a support to me. Our little guy is now almost 3 and 14 months post kidney transplant. he was on peritoneal dialysis for 13 months before he got his kidney. I remember feeling so alone and it wasn't until I found Jill's site for Gavin that I felt like someone understood. Hi all who have asked about connecting with other moms with babies on dialysis/transplant. There is a great group called Kidney Moms on Facebook. Feel free to join. These mamas have been such a support to me. Our little guy is now almost 3 and 14 months post kidney transplant. he was on peritoneal dialysis for 13 months before he got his kidney. I remember feeling so alone and it wasn’t until I found Jill’s site for Gavin that I felt like someone understood.

]]> Comment on Gav’s Numbers Off Kilter…New Addition to Our Family. by Bruce http://www.savebabygavin.com/2008/11/12/gavs-numbers-off-kilternew-addition-to-our-family/comment-page-1/#comment-112188 Bruce Wed, 19 May 2010 17:56:44 +0000 http://www.savebabygavin.com/?p=272#comment-112188 Congratulations on the baby girl that will be joining your family. It was so fun this summer when we met for the boat ride, Gavin is getting so big. The kids had so much fun together, hopefully we will have more gatherings next year with the kidney family's so we can keep up on everyone's miracles. God bless your family Stacey Elsenpeter Congratulations on the baby girl that will be joining your family. It was so fun this summer when we met for the boat ride, Gavin is getting so big. The kids had so much fun together, hopefully we will have more gatherings next year with the kidney family’s so we can keep up on everyone’s miracles.

God bless your family

Stacey Elsenpeter

]]> Comment on About Peritoneal Dialysis by Candace http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/comment-page-1/#comment-111483 Candace Wed, 12 May 2010 19:56:29 +0000 http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/#comment-111483 I have lost 2 to PKD and I have 2 month old with it but doing ok right now her creatine just jumped up to 2 so we are not going to dialysis yet but we are still watching. I have lost 2 to PKD and I have 2 month old with it but doing ok right now her creatine just jumped up to 2 so we are not going to dialysis yet but we are still watching.

]]> Comment on About Peritoneal Dialysis by Andria http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/comment-page-1/#comment-111399 Andria Tue, 11 May 2010 02:19:00 +0000 http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/#comment-111399 Sonya, I don't know about a Facebook page, but our son is 18 months old and preparing for transplant. He's been on PD since he was a week old. If you have any questions or comments, or would like to chat, e-mail us anytime at reymores @ gmail . com. Hope all is well with Blake, good luck to you! Sonya, I don’t know about a Facebook page, but our son is 18 months old and preparing for transplant. He’s been on PD since he was a week old. If you have any questions or comments, or would like to chat, e-mail us anytime at reymores @ gmail . com. Hope all is well with Blake, good luck to you!

]]> Comment on About Peritoneal Dialysis by Sonya Stone http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/comment-page-1/#comment-108228 Sonya Stone Tue, 30 Mar 2010 06:51:51 +0000 http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/#comment-108228 Does anyone have a website or Facebook I could keep in touch it would be great to chat with other parents who have babies on PD dialysis... my son is 17 months his name is Blake- they truly are superbabies Does anyone have a website or Facebook I could keep in touch it would be great to chat with other parents who have babies on PD dialysis… my son is 17 months his name is Blake- they truly are superbabies

]]> Comment on About Peritoneal Dialysis by Andria http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/comment-page-1/#comment-106545 Andria Fri, 05 Mar 2010 03:16:20 +0000 http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/#comment-106545 Rebecca, with the right care, a 10 pound baby can certainly do peritoneal dialysis. I'm not sure about other issues, but size alone won't keep him from doing well on dialysis. Our son survived from 4 pounds to 25 pounds, and is preparing for a transplant. Don't give up! Rebecca, with the right care, a 10 pound baby can certainly do peritoneal dialysis. I’m not sure about other issues, but size alone won’t keep him from doing well on dialysis. Our son survived from 4 pounds to 25 pounds, and is preparing for a transplant. Don’t give up!

]]> Comment on Happy 4th Birthday Gavin! by Anne Grahl http://www.savebabygavin.com/2010/02/23/happy-4th-birthday-gavin/comment-page-1/#comment-106029 Anne Grahl Thu, 25 Feb 2010 18:51:30 +0000 http://www.savebabygavin.com/?p=330#comment-106029 HAPPY BIRTHDAY GAVIN!!!! Four years old, wow!! Where does time go?!?!?! Sending hugs and tons of continued prayers that you stay healthy. p.s. Have your Mom udate some new pics. Mason and Meg say hi!! HAPPY BIRTHDAY GAVIN!!!! Four years old, wow!! Where does time go?!?!?! Sending hugs and tons of continued prayers that you stay healthy. p.s. Have your Mom udate some new pics. Mason and Meg say hi!!

]]> Comment on Happy 4th Birthday Gavin! by Jessica http://www.savebabygavin.com/2010/02/23/happy-4th-birthday-gavin/comment-page-1/#comment-105918 Jessica Wed, 24 Feb 2010 06:42:35 +0000 http://www.savebabygavin.com/?p=330#comment-105918 Happy, Happy 4th Birthday Gavin!!!! You are an amazing boy! Happy, Happy 4th Birthday Gavin!!!! You are an amazing boy!

]]> Comment on Happy 4th Birthday Gavin! by the Uchytils http://www.savebabygavin.com/2010/02/23/happy-4th-birthday-gavin/comment-page-1/#comment-105887 the Uchytils Tue, 23 Feb 2010 19:13:20 +0000 http://www.savebabygavin.com/?p=330#comment-105887 Happy 4th Birthday Gavin!!! Can't believe you are 4 years old already!!! Hope you have a fantastic day. We will be thinking about you enjoying your cake and ice cream. Love-n-Hugs to all, the Uchytils Happy 4th Birthday Gavin!!!
Can’t believe you are 4 years old already!!!
Hope you have a fantastic day. We will be thinking about you enjoying your cake and ice cream.
Love-n-Hugs to all,
the Uchytils

]]> Comment on About Peritoneal Dialysis by rebecca clark http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/comment-page-1/#comment-105472 rebecca clark Wed, 17 Feb 2010 05:38:59 +0000 http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/#comment-105472 My nephew is currently in the picu on an ecmo machine. the drs repaired part of his heart problems but also informed us that a baby his size has a slim chance on surviving dialysis. he is only three weeks old and weighs 4.7 kilos about 10 lbs. reading your stories gives me hope. thank you My nephew is currently in the picu on an ecmo machine. the drs repaired part of his heart problems but also informed us that a baby his size has a slim chance on surviving dialysis. he is only three weeks old and weighs 4.7 kilos about 10 lbs. reading your stories gives me hope. thank you

]]> Comment on About Peritoneal Dialysis by Sheila Lunsford http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/comment-page-1/#comment-105031 Sheila Lunsford Sun, 07 Feb 2010 00:41:13 +0000 http://www.savebabygavin.com/2006/10/30/about-peritoneal-dialysis/#comment-105031 My daughter was born with a kidney disease called Polycystic Kidney Disease. This causes multiple cysts to grow and the kidneys become very enlarged. Most babies dont live very long with this disease. Needless to say I had a son who had it also and only lived 10 hours. Thanks to the man above my daughter will be 3 months old on the 17th of Feb. She has been on dialysis since she was 3 weeks old. She had her first kidney taken out at 3 weeks old also. She just had her second kidney taken out about a week and half ago. So she no longer has kidneys. She just had a G tube put in also. Shes doing so good. Shes such a fighter. Shes doing well with her dialysis. Im learning the dialysis machine now to prepare for her to come home. She will be on it at least 16 hours out of the day when she comes home. We have alot of ups and downs but she makes it well worth it. After losing one child already to this disease I'll do anything to keep her here on earth with me. God is making that happen for us. Its nice to read these replys and see that there is other people out there in the same situation and that Im not alone. I will be praying for all of you. Everyone keep there heaads up and keep fighting for your child. We are the only ones that can fight for them. My daughter was born with a kidney disease called Polycystic Kidney Disease. This causes multiple cysts to grow and the kidneys become very enlarged. Most babies dont live very long with this disease. Needless to say I had a son who had it also and only lived 10 hours. Thanks to the man above my daughter will be 3 months old on the 17th of Feb. She has been on dialysis since she was 3 weeks old. She had her first kidney taken out at 3 weeks old also. She just had her second kidney taken out about a week and half ago. So she no longer has kidneys. She just had a G tube put in also. Shes doing so good. Shes such a fighter. Shes doing well with her dialysis. Im learning the dialysis machine now to prepare for her to come home. She will be on it at least 16 hours out of the day when she comes home. We have alot of ups and downs but she makes it well worth it. After losing one child already to this disease I’ll do anything to keep her here on earth with me. God is making that happen for us. Its nice to read these replys and see that there is other people out there in the same situation and that Im not alone. I will be praying for all of you. Everyone keep there heaads up and keep fighting for your child. We are the only ones that can fight for them.

]]> Comment on What is End-Stage Renal Failure? by angie see http://www.savebabygavin.com/2006/10/30/what-is-end-stage-renal-failure/comment-page-1/#comment-104164 angie see Thu, 21 Jan 2010 07:29:09 +0000 http://www.savebabygavin.com/2006/10/30/what-is-end-stage-renal-failure/#comment-104164 My little nephew 1 month old is diagnosed with acute renal failure when he started a fever on his 7 days old, admitted hospital for 5 days in private hospital(injection of antibiotic and fever medicine) and turned seizure and coma refer to our general hospital at KUALA LUMPUR and doctor diagnosed as sepsis/pnemonia and became acute renal failure! Became too ill to be treated as doctor tried 2 times dialysis also failed, whatever treatment that can think of already given, no improvement! Everyone give up, sent back home without any medication, 13 days from hospital he became stronger but with kidney failure symptom wake up from coma, urine pass motion and can suck milk by himself, this few days signed of pain when carried and put him down he will cried loudly. We pray to Jesus for a miracle healing. As his improvement all have been proven, now waiting another miracle healing on his kidney as dialysis is too painful for a small baby. My little nephew 1 month old is diagnosed with acute renal failure when he started a fever on his 7 days old, admitted hospital for 5 days in private hospital(injection of antibiotic and fever medicine) and turned seizure and coma refer to our general hospital at
KUALA LUMPUR and doctor diagnosed as sepsis/pnemonia and became acute renal failure! Became too ill to be treated as doctor tried 2 times dialysis also failed, whatever treatment that can think of already given, no improvement! Everyone give up, sent back home without any medication, 13 days from hospital he became stronger but with kidney failure symptom wake up from coma, urine pass motion and can suck milk by himself, this few days signed of pain when carried and put him down he will cried loudly. We pray to Jesus for a miracle healing. As his improvement all have been proven, now waiting another miracle healing on his kidney as dialysis is too painful for a small baby.

]]> Comment on Gavy Admitted to Hospital on November 23, 2009. Prayers Needed! by Angie Hallmark http://www.savebabygavin.com/2009/11/25/gavy-admitted-to-hospital-on-november-23-2009-prayers-needed/comment-page-1/#comment-102345 Angie Hallmark Tue, 15 Dec 2009 09:39:36 +0000 http://www.savebabygavin.com/?p=316#comment-102345 I've been thinking about you all lately and came to check out your page. This isn't what I wanted to see. Please know that I'm holding Gavin close to my heart and keeping your family in my prayers. ~ Angie I’ve been thinking about you all lately and came to check out your page. This isn’t what I wanted to see. Please know that I’m holding Gavin close to my heart and keeping your family in my prayers.

~ Angie

]]> Comment on Prayers Answered, Gavy is Home! by Ruth Stalker-Firth http://www.savebabygavin.com/2009/11/25/prayers-answered-gavy-is-home/comment-page-1/#comment-101934 Ruth Stalker-Firth Sat, 05 Dec 2009 23:06:07 +0000 http://www.savebabygavin.com/?p=327#comment-101934 Thinking of you, and trusting that Gavy will get stronger and stronger. Sending you all our love x Thinking of you, and trusting that Gavy will get stronger and stronger.

Sending you all our love x

]]> Comment on Gavy Admitted to Hospital on November 23, 2009. Prayers Needed! by Melissa Mularski http://www.savebabygavin.com/2009/11/25/gavy-admitted-to-hospital-on-november-23-2009-prayers-needed/comment-page-1/#comment-101336 Melissa Mularski Thu, 26 Nov 2009 03:28:58 +0000 http://www.savebabygavin.com/?p=316#comment-101336 Dear Winslows, Our prayers and thoughts are with you and especially Gavin!!! We hope he's home soon and hope you all have a wonderful Thanksgiving. Best wishes, Melissa (Manske) Mularski and family Dear Winslows,

Our prayers and thoughts are with you and especially Gavin!!! We hope he’s home soon and hope you all have a wonderful Thanksgiving.

Best wishes,

Melissa (Manske) Mularski and family

]]> Comment on Gavy Admitted to Hospital on November 23, 2009. Prayers Needed! by the Uchytils http://www.savebabygavin.com/2009/11/25/gavy-admitted-to-hospital-on-november-23-2009-prayers-needed/comment-page-1/#comment-101312 the Uchytils Wed, 25 Nov 2009 17:06:20 +0000 http://www.savebabygavin.com/?p=316#comment-101312 Praying for quick recovery and that Mr. Gavin can be home for Thanksgiving!!! Hugs to ALL, the Uchytils Praying for quick recovery and that Mr. Gavin can be home for Thanksgiving!!!
Hugs to ALL,
the Uchytils

]]> Comment on Guestbook by Jen, Jeremy & Jacob Schultz http://www.savebabygavin.com/guestbook/comment-page-8/#comment-101310 Jen, Jeremy & Jacob Schultz Wed, 25 Nov 2009 16:49:05 +0000 http://www.savebabygavin.com/guestbook/#comment-101310 Oh, I am praying like crazy, Jill and Jay. I am so scared and hope that this all gets 'resolved' quickly. You guys are so amazing and you deserve nothing less than the best of everything. Hang in there, buddy. We love you <3 Oh, I am praying like crazy, Jill and Jay. I am so scared and hope that this all gets ‘resolved’ quickly. You guys are so amazing and you deserve nothing less than the best of everything. Hang in there, buddy. We love you <3

]]> Comment on Photo Gallery by Robert A. http://www.savebabygavin.com/photos/comment-page-1/#comment-100158 Robert A. Wed, 04 Nov 2009 21:11:05 +0000 http://www.savebabygavin.com/photos/#comment-100158 Just wanted to let you know that my daughter used Gavin and Lulu's wonderful pics for a visual aid in a speach she gave for school, (her RN program). She left the house this morning feeling more prepared, excited to raise some awarenes...and bawlin like a baby! Also, I have been an eye, organ, ane tissue donor since my first driver's licence over 45 years ago! God Bless the Babies!!!!! Just wanted to let you know that my daughter used Gavin and Lulu’s wonderful pics for a visual aid in a speach she gave for school, (her RN program). She left the house this morning feeling more prepared, excited to raise some awarenes…and bawlin like a baby! Also, I have been an eye, organ, ane tissue donor since my first driver’s licence over 45 years ago! God Bless the Babies!!!!!

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